Rare Disease Day in the United Kingdom 2017
The United Kingdom has engaged in Rare Disease Day since its beginning in 2008. Taking a political approach, many patient organisations have held receptions and debates focused on rare disease policy in local and national parliaments. In 2016, furthering the important advocacy work done for rare diseases in the UK, Rare Disease UK held receptions in the Scottish and Westminister parliments to launch a report from the UK Rare Disease Forum, the group charged with overseeing the implementation of the UK Strategy for Rare Diseases. Guests and speakers included influentional policy makers and people living with a rare disease. Other events included a photography exhibition and a sponsored Kilimanjaro climb which all raised awareness for rare diseases.
Mid and West Wales SCiP Conference 2017
All Together Now: Communities that Care
30 March 2017 - Parc y Scarlets, Llanelli
All social care providers in Mid and West Wales are warmly invited to attend. The event will be particularly relevant to leaders in the commissioning and provision of care and support and those with responsibility for HR/training/organisational development/education.
Responding to positive feedback from last year’s event, this conference will again be participative in format with a programme designed to challenge existing thinking and encourage innovation. In keeping with the principles of the Social Services and Wellbeing (Wales) act the emphasis will be on how citizens, carers, commissioners and providers must collaborate to achieve individual and collective wellbeing. The event will provide an opportunity to explore a key theme of the Social Services and Wellbeing Act; the importance of placing individuals and communities at the heart of health and wellbeing. The sessions will challenge you to think about the relationship between prevention and services. You will be encouraged to think about your own practice and that of your staff in relation to communities, users and carers. Inspirational speakers will provide a range of perspectives and practical examples of transformational practice. There will be discussion, debate and action learning. Be prepared for an interactive and creative day! .
Alan Thomas - Board Member, West Wales Care PartnershipDr Kevin Doughty - Director of the i-Centre for Usable Home Technologies and Associate Director of Telehealth Quality Group Sue Darnbrook - Strategic Director Care, Protection and Lifestyle, Ceredigion County Council Emma Falkner - Leadership Consultant Sarah McCarty - Director of Workforce Learning and Development, Care Council for Wales Sarah Pask - Frailty and chronic conditions nurse, South Ceredigion GP cluster Julia Wilkinson - Locality Manager, Carmarthenshire County Council .